Living with Grief When Illness is Prolonged, edited by Kenneth Doka, Ph.D. & Joyce Davidson.    Hospice Foundation of America, 1997                            

This book is a collection of  papers about how a prolonged illness is slowly killing a person, and how that is different from a sudden death or one with a short illness. Prolonged illness means that the care giver is on call for a much longer time; this takes a huge toll on the caregiver both mentally and physically. On the one hand, a longer illness gives time for talking, finding out about the dying person’s life and opinions, and for understanding and forgiving. But the longer time needing care can bring on feelings of guilt in the dying person, fearing they are asking too much of their family.

It’s an interesting book, but because it’s written by several people, certain passages are much more user friendly than others. It goes over such things as anticipatory grief, ethical considerations, hospice care, and sections on AIDS, cancers, and Alzheimer’s disease. The final part consists of how long term disease effects children and teens, things the caregiver should do, and the use of rituals both before and after death. I’d give it five stars for useful information, but only 3 ½ stars for being reader friendly- many passages seem to be written for the professional hospice worker, mental health professional, or MD. So that leaves it with a 4 star rating.