Simon Fitzmaurice was only 33 when he was given a diagnosis
of ALS (Lou Gehrig’s disease, motor neuron disease) and given four years to live.
A filmmaker with a young family, he wasn’t about to just sit and give up. In
2010, the muscles that allowed him to breathe failed, and he was advised to just
die quietly. He opted, against medical opinion, to go on a ventilator. Since
then, he has sired more children, written and directed a movie, and written
this autobiography, along with, of course, being a father and husband every
day. Not exactly a waste of resources!
The book is short and a fast read (less than two hours), but
it’s not lightweight. It’s very heavy. This horrible disease has stolen so much
from Fitzmaurice, but he lives every day to the fullest. He communicates via an
eye glance computer, which turns his eye movements into a voice. His family is
100% supportive. He has a lot to live for and a lot of things he wants to get
done. It’s pretty inspirational. Four stars out of five.
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I received this book free from the Amazon Vine program in exchange for an honest review.
Neither of these things affected my review.
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